Ash has been on a few medicines
to control his epilepsy. In big and small ways, they have all led to some
combination of him being defiant, emotional, aggressive, unfocused,
sleepy, forgetful, and hungry. It makes for very interesting days and sometimes I don’t
know what to do with him. I know that his body is completely out of control and
he can’t process it let alone deal with it and function as he used to, but I
also know that he needs boundaries. Just maybe not the typical boundaries
you would place on an 8 year old. It’s a very tough place to be at his
mother.
So if you see us out and I’m not
punishing or redirecting or *handling* him in a way you think is effective, because you either don’t know us or forget all that is going wild
within his little 8 year old body, remember this…
I am raising up a warrior, not
manufacturing an obedient, unquestioning, robotic soldier only capable of
following commands. I am concerned about his heart and I want him to always
know this:
if you feel like you can’t be messy and complicated anywhere else, you can always be that with your mama. I will love you in your mess and help you figure out ways to cope. I won’t let you be unkind, hurt others or take advantage of the fact that I’m loving you in this, but while we are in this “figuring it out” stage, I’m giving you a heck of a lot of grace.
I’m following my Heavenly
Father’s lead in this, remembering what He does for me and doing that for our
child. At this point, I don’t even think Ash is capable of taking advantage
of my love for him in this. He’s just surviving. We all are.
I may mess up
sometimes and give him more room to be naughty and get away with
it because the thought of him on all of these medications makes my heart
hurt, but I always want to err on the side of love and give him room to work
this all out in a safe place. As long as I’m doing that, I have all the room in the world to
mess up, try again, and see what happens. I may get overwhelmed in this
medically complex life, but I’ll never lose heart. We as a family
will never lose heart.
Asher has a big
purpose in this life and no matter what it takes to keep him safe enough to
fulfill it, I’ll do it. Sometimes I have a really tough time knowing
exactly what to do for him, but I KNOW how to love him. I'll do that for all of
my days.
Asher’s heart and his flesh
and his lungs and his immune system
and his skin and his vision
and his attention and his brain synapses
and his focus and his medication may fail
BUT GOD
is the strength of his big ol' heart
and his portion forever.
Amen!
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