Do The Next Thing

It's easy to get discouraged on the epilepsy journey, but I refuse. 

We started Asher's medicine very low and have been trying to find the level of different medications that work together for him. For a year and a half. It's easy to get discouraged if you forget that this is a marathon and not a sprint. And it's not enough for me to just know that, I had to live it and be frustrated and want to give up and finally just accept it.  That is a very concise way to say what it looked like (can you say internal adult tantrums?)

It's like pushing a stroller, while walking your first 5k, with three kids hanging off of you, everyday. (Not that I would know hehe). In the grand scheme of things, this time in our life is but a vapor and we know what is coming just around the corner. A miraculous healing whether that manifests in a sudden, unexplainable complete healing of his body OR in finding his sweet spot suddenly on medications. Whatever it looks like, we will believe this until the day we die. That day will bring healing anyway. 

So we're taking a deep breath and doing the next thing.

Today, that is to monitor his behavior, have the video camera ready, email his doctor with notes and not obsess.  Not live in wait of the next episode.

Whatever you're facing today, remember that you don't have to run it at full speed, with no water, in the hot sun, everyday, to prove that you can run it/handle it. It just wears you out. One race (day) at a time is nice, but slow it down to one step at a time. 

Gather your breaths, wave to the people cheering you on and accept their water. Curl up under a big tree if you need to and cry yourself into a nap before you continue. When you wake up, stretch and take off again. We all have our races to run and we're all in this together. I'm with you.